World CP Day 2020

“World CP Day is an opportunity for the whole world to come together to recognise and celebrate the 17 million people around the world living with cerebral palsy.

On October 6 every year, individuals, families and organisations celebrate by sharing stories, hosting events, and wearing the color green.”

Source: https://worldcpday.org/about-us/

If I’ve still got your attention, let me briefly elaborate on my purpose of sharing my story. I know that not everyone with a disability has a voice to advocate for themselves, so I’m striving to use my voice in the best way that I can. I know that accessibility is typically not a priority for those who aren’t directly impacted. I’ve experienced first-hand what ableism is and identify that HOW people talk about and to those with disabilities needs to be changed.

If you’re on a personal path that’s committed to opening your mindset and educating yourself on what it’s like to live with a disability or know someone personally with a disability, I appreciate you. You’re taking a positive step in the right direction. With more understanding and compassion, inclusivity and acceptance would be more attainable for the greater good.

If you stumbled across my page, take a few minutes to explore and learn about Cerebral Palsy.

As defined by the National Institute of Neurological Disorders and Stroke: “Cerebral Palsy refers to a group of neurological disorders that appear in infancy or early childhood and permanently affect body movement and muscle coordination. CP is caused by damage to or abnormalities inside the developing brain that disrupt the brain’s ability to control movement and maintain posture and balance. The term cerebral refers to the brain; palsy refers to the loss or impairment of motor function.”

There are varying degrees of CP, and each person who is diagnosed can be affected in different ways on a more (or less) severe scale. While I certainly don’t claim to be a medical expert on the topic, my experience is personal to my story and is in no way meant to be a one-size-fits all representation.

With there being a few different forms of CP, I wanted to go more in depth about the form I have. Birth Injury Guide shares that “Diplegic cerebral palsy is a form of cerebral palsy marked by tense muscles and spasms. Leg muscles in particular tend to be extremely tight, and over time, this causes joints to stiffen, reducing the range of motion. Diplegic CP is considered one of the milder forms of the disorder, and most children’s intelligence and cognitive functions are not severely affected, although they may take longer to reach intellectual milestones.”

I am extremely fortunate to have one of the milder cases of CP. Luckily, I am able to live an independent lifestyle and often times only need assistance in particular instances. I can talk, I can feed myself, I can drive a car, shower by myself and honestly most things a physically-abled person can do. Not to say that I do not need to alter the way some things are done or rely on the help of others to assist with certain tasks. Like, if you need a hot bowl of soup transported from the kitchen to the dining room table – I am NOT your girl. 😉

Overall, I’ll continue to blog about my experiences and share them through social media and appreciate you following along in my journey.

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